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Resources
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The Pediatric Blood and Marrow Transplant Consortium (PBMTC) is comprised of a voluntary group of clinicians and scientists engaged in the area of Hematopoietic Stem Cell Transplantation. The purpose of the PBMTC is to engage in scientific and educational activities related to the use of hematopoietic stem cells in the treatment of diseases of children and adolescents.
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CureSearch unites the Children's Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF) through a shared mission to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care. At more than 200 COG member institutions worldwide, physicians, nurses and scientists are conducting clinical trials and performing research to identify cancer causes and to pioneer treatments and cures. CureSearch NCCF supports this lifesaving research by raising public awareness and funds, which directly contributes to increasing survival rates.
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The Future of Nursing explores how nurses' roles, responsibilities, and education should change significantly to meet the increased demand for care that will be created by health care reform and to advance improvements in America's increasingly complex health system.
At more than 3 million in number, nurses make up the single largest segment of the health care work force. They also spend the greatest amount of time in delivering patient care as a profession. Nurses therefore have valuable insights and unique abilities to contribute as partners with other health care professionals in improving the quality and safety of care as envisioned in the Affordable Care Act (ACA) enacted this year.
Nurses should be fully engaged with other health professionals and assume leadership roles in redesigning care in the United States. To ensure its members are well-prepared, the profession should institute residency training for nurses, increase the percentage of nurses who attain a bachelor's degree to 80 percent by 2020, and double the number who pursue doctorates. Furthermore, regulatory and institutional obstacles -- including limits on nurses' scope of practice -- should be removed so that the health system can reap the full benefit of nurses' training, skills, and knowledge in patient care.
In this book, the Institute of Medicine makes recommendations for an action-oriented blueprint for the future of nursing. |
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The OMG! Cancer Summit is the premiere oncology conference and social networking event for the young adult cancer movement. A program of the I'm Too Young For This! Cancer Foundation, the OMG! Cancer Summit, now in it's 5th year, has become a pivotal healthcare event that inspires thousands of survivors, caregivers and providers—along with scores of academic, advocacy, research and support organizations—to get organized, build community and unite as one to drive change.
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The National Hemophilia Foundation’s Nursing Working Group is a sub-group of the NHF's Medical and Scientific Advisory Council. It was established to enhance and promote standards of hemophilia, bleeding disorders, and thrombophilia nursing practice; support and foster professional development of hemophilia, bleeding disorders, and thrombophilia nursing through education, collaboration and nursing research; and facilitate health promotion and education within the bleeding disorders community. |
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LIVESTRONG (Lance Armstrong Foundation)
The Lance Armstrong Foundation is a registered 501(c)(3) nonprofit organization located in Austin, Texas. Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF inspires and empowers people with cancer. It serves its mission through education, advocacy, public health and research programs. Approximately 55 million people around the world wear a LIVESTRONG™ wristband in support of people living with cancer.
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The International Society of Nurses in Cancer Care (ISNCC), founded in 1984, is an international federation of national cancer nursing societies, regional cancer nursing societies, oncology institutions, individual cancer nurse practitioners, researchers, and educators. ISNCC has over 60 member groups, representing 42 countries. Globally, ISNCC represents over 80,000 cancer nursing professionals. ISNCC is a non-governmental member of the World Health Organization (WHO), is affiliated to the International Council of Nurses (ICN) and the International Union Against Cancer (UICC), and is a member of the Pan American Health Organisation (PAHO).
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Alex's Lemonade Stand Foundation is a unique foundation that has evolved from a young cancer patient's front yard lemonade stand to a nationwide fundraising movement for childhood cancer. Alex's Lemonade Stand Foundation is committed to:
*Raising money and awareness for pediatric cancer causes, primarily research into new cures and treatments.
*Encouraging and educating others, especially children, to raise money for Alex's Lemonade Stand Foundation for childhood cancer.
For guidelines and more information visit: http://www.alexslemonade.org/grants/nursing
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A Lion in the House: This groundbreaking, award-winning documentary tells the intimate story of five families facing childhood cancer across six years. The film gave birth to public outreach and awareness campaigns which continue to have national and international impact. The site includes a wealth of resources for the public and for health care professionals.
American Cancer Society: An organization of over 2,000,000 Americans working to conquer cancer. The Society’s programs focus on research, prevention, detection, treatment, patient services and advocacy.
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Aplastic Anemia & MDS International Foundation:Dedicated to supporting patients and families who are living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases. Founded in 1983, AA&MDSIF offers numerous patient education resources, including free educational materials, an online learning center, a peer support network, patient and family conferences, newsletters, e-bulletins and personalized support from patient educators. |
Cancer Pain Management in Children
Candlelighters Childhood Cancer Foundation: An international organization providing support, education, and advocacy programs for families of children with cancer, survivors of childhood cancer, and the medical and psychosocial professionals who treat them.
Cooley’s Anemia Foundation
HIVpositive.com: HIVpositive.com features a wide range of topics including the latest treatments for HIV and its opportunistic infections. There's help for women and children with HIV, and for people who care for patients. HIV and hemophilia is covered indepth.
Leukemia Society of America: The Leukemia Society of America is a national voluntary health agency dedicated to improving the quality of life of patients with leukemia, lymphoma and multiple myeloma. They provide educational materials, patient service programs, and support medical research.
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NAPPSI Individual Membership Available Free to all APHON Members
APHON is proud to announce that it strongly supports the National Alliance for the Primary Prevention of Sharps Injuries (NAPPSI) and is a NAPPSI corporate member. NAPPSI’s mission is to advance medical sharps-injury protection in the healthcare environment through vigorous promotion of Primary Prevention technologies and practices. Primary Prevention of sharps injuries is a technology or practice (e.g., securement device instead of suture needle for catheter securement) that reduces or eliminates the need to introduce a sharp implement into the healthcare workplace.
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National Cancer Institute: The Pediatric Branch of NCI provides a Web site with information about types of treatments available for children with cancer or HIV infection. Another resource offered by the NCI is CancerNet, which offers an abundance of cancer information to patients, health profesionals, and scientists.
OncoLink: A multimedia oncology information resource from the University of Pennsylvania Medical Center, this site features a wealth of general information in OncoLink's Pediatric Oncology Page and disease-specific information in OncoLink's Disease-Oriented Menus.
The Oncology Nursing Certification Corporation (ONCC), incorporated in 1984, is a non-profit organization that develops, administers, and evaluates programs for certification in oncology nursing. The mission of ONCC is to promote and provide oncology nursing certification for the enhancement of patient care and professional practice.
The Oncology Nursing Society is a professional organization for registered nurses, devoted to promoting excellence in oncology nursing. This site provides information about ONS membership, publications, and educational opportunities.
Pediatric Hematology/Oncology Web Resource: Developed at the Pennsylvania State University Children’s Hospital, this is a resource for children with cancer as well as for the people who care for them.
- Pediatric Oncology Nursing Small Project Grants Up to $10,000 will be awarded to the chosen applicants, with a minimum of 3 small project grants to be awarded each year. These awards are designed to support the efforts of beginning nurse researchers to accomplish small research projects with both mentor and institutional support. Examples of fundable projects might include collecting information to answer a nursing question related to care of the child with cancer or applying research based evidence to improve pediatric cancer nursing practice at the institution.
- Pediatric Oncology Nursing Mid-Level Project Grants Up to $20,000 will be awarded to chosen applicants, with a minimum of 3 mid-level project awards to be given out each year. Mid-level project awards are designed to financially support efforts of more experienced nurse researchers to accomplish research projects with the support and commitment of the institution where they practice. Such projects may collect information to answer a nursing question related to care of the child with cancer or may be designed to apply research evidence to improve pediatric cancer nursing practice at the institution. Awards may be used to supplement other support in a large project.
- Distinguished Pediatric Oncology Nurse Researcher Grant Up to $50,000 will be awarded to the chosen applicant, with a minimum of 1 Distinguished Pediatric Oncology Nurse Researcher Grant to be awarded each year. This award is designed for an experienced nurse researcher. Demonstration of a career plan that shows commitment to pediatric cancer nursing is a critical component of a successful application. These applications are expected to be from experienced investigators who require seed money to investigate topics and issues related to the quality of nursing care and the quality of life for children with cancer. Awards may be used to supplement other support in a large project.
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