Reply To: Family education teaching sheets

  • Colleen Nixon

    August 12, 2019 at 12:58 pm

    Thanks everyone who has already answered the family education resource question. I have another question, who gathers the info to give to patients, ie if you have a patient with leukemia do they all get the same info? Thanks, Colleen


    Colleen Nixon, MSN, RN, CPHON®
    Hematology/Oncology Clinical Educator
    Boston Children’s  Hospital
    Boston MA 02115
    (617) 355-3611




    ——Original Message——

    We use:

    APHON med sheets and family booklets

    COG binder with our institution’s info added, and COG New Diagnosis booklet

    Curesearch website for protocol summaries, research results, late effects worksheets

    Lexicomp pt education med sheets for those not in the APHON med sheets

    Leukemia/Lymphoma Society patient education downloads

    National Brain Tumor Alliance family education




    On the APHON website, there is a list of patient/family education websites with some good information


    Mary Conway Keller

    Pediatric Clinical Nurse Specialist

    Center for Cancer and Blood Disorders

    CT Children’s Medical Center

    282 Washington Street

    Hartford, CT 06106


    **Connecticut Children’s Confidentiality Notice**
    This e-mail message, including any attachments, is for the sole use of the intended recipient(s) and may contain confidential and privileged information. Any unauthorized review, use, disclosure, or distribution is prohibited. If you are not the intended recipient, or an employee or agent responsible for delivering the message to the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message, including any attachments.